I will update this post through the next round to track side effects.

May 27, Wednesday day 1

Well, I almost got my wish with missing an infusion today. My platelets are really low, I just had to promise not to fall and start bleeding or if I get a bloody nose that won’t stop, go to the ER.  Apparently, platelets make your blood clot.  Pretty important. But what is also important is to stay on schedule and continue killing the cancer in my body as fast as we can. 

It was a rough day, but we got through. I yelled at the scale and told the nurse that it wasn’t right. I swore I had gained 3 lbs, only to be weighed again, and that confirmed I had lost weight.  I need to start drinking ensure and other high caloric drinks in addition to meals.

 Scott brought me and met with the Dr as well.  Jessica visited and  brought me home and then picked up my mom (met my sister half way) so she gets the superstar award.  I need to come up with something to hand out to my speic helpers….hmmm…

Hand cramping, burning eyes, cannot touching cold items and general discomfort have started. 

I sang “here we go again” in the chemo chair.  Jessica sang with me.  The  nurse just laughed.

I suck at having cancer…

Thursday, May 28- Sunday, May 31

It’s been a rough go… And it is causing me to get a little down in the dumps. It’s hard when you mentally feel good but your body will not follow the minds lead.

Thursday- Friday, general nausea, no appetite, and tired. Lots of tingly in hands and feet.  My tears literally burn my eyes, which makes me soo crying pretty fast. 

Saturday and Sunday, the crazy thing is, I will feel ok and 10 minutes later I’m running to the bathroom to throw up. I slept most of the weekend. And I find myself praying that God is carrying me through this round.  Just feeling really weak.  Weak stomach and a weak heart. 

The kids are crazy and funny and I can’t help but feel sad that I’m not enjoying it to the fullest.  But I’m here and I wake up every morning.  And I enjoy the little tid bits of calm through out the day.

Overall, feeling like I am sucking at being a cancer patient this week.  

I do have a new tactic for taking pills. Every pill is a future memory. Cecilia’s first dance recital. Jeffrey’s first baseball game..

Last day of pills

June 2.  It was a good day!

I got up and was on my own with the kids and we had the best day. Kristi came over with  Tommy and Nicholas for an hour and the boys ran around. Later, me and the kids had a dance party. When Scott got home, I could tell he was happy to see me feeling good.

Wednesday, June 3

It was a rough night and I didn’t sleep. One of the pills I take has a side effect of insomnia. I was meeting up with my friend Emily for a play date and I was thinking I should suggest the Botantical Gardens but it was nice that we were just going across tr street to her house. By the time I got the kids fed and dressed, over there and back home, I couldn’t get the kids fed lunch and down for a nap soon enough.  I was EXHAUSTED. When Scott got home, he asked, “what happened? You don’t look so great.”  And I didn’t.

Thursday, June 4

We headed to Effingham to take care of some business and Scott took a couple days off of work. It was an ok ft and a rough night. I could barely eat dinner and ended up throwing up right before bed. WTF! On an off day?!?

Friday, June 5

Didn’t sleep from 1am to 4:30am.  Emailed a friend who I going through a trying time (couldn’t stop thinking about her) are a bowl of cereal at 3:30am (it was good!)  while reading the Effingham Daily News.  

Had a meeting with Scott. And had lunch with my three sisters.  Decided we should rule the world! And solved the problems of the world! 

That night had a nice summer evening of the kids running around with their cousins!

June 6-8

Spent the weekend in St. Louis and I felt good.  I stopped taking the pill that causes insomnia and I’ve been sleeping, so that has been nice. Besides being tired and mild nausea, the side effects have finally gone away. 

   

 

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